Hey there! I’m Sara (some people call me Sadie), a classy, sassy, female living life with Crohn’s disease, a j-pouch, intestinal dysmotility, and autoimmune arthritis. It is my goal to show others how to be positive, and to own their disease instead of letting it own them, while educating them about Crohn’s disease and ulcerative colitis (IBD) along the way.
My first hospitalization came when I was just 10 months old and my last hospitalization was not that long ago. After years of hospitalizations I finally got an official diagnosis of ulcerative colitis in 1996. In 2008 I underwent surgery to have my entire large intestine and rectum removed (sooo glamorous) and have a temporary ileostomy created, along with an internal ileo-pouch (j-pouch) constructed. A few months later I had a 2nd surgery to reverse my ileostomy and start using my j-pouch and to remove adhesion’s that were strangling my small bowel and causing a full blockage. I also wound up with an infection in my PICC line that sent me to the ICU and went through complication after complication resulting in a six month hospital stay. In 2011 I found out that my original diagnosis of ulcerative colitis was incorrect and that I actually have Crohn’s disease. In 2014 I had my third major surgery after my bowel had twisted around the mesenteric artery cutting off oxygen and blood flow to the bowel. I currently treat my disease with remicade infusions every 7 weeks and do TPN feedings from home. I live life to the fullest on the days that I can, knowing that a hospitalization could be (and usually is) just around the corner. Living with Crohn’s disease isn’t easy, but it made me pretty awesome! To read more about my health click on ‘My Story’ in the menu up above.
More: I’m a health activist in the community of inflammatory bowel disease (Crohn’s disease and ulcerative colitis). Besides this blog, my YouTube channel, and various other projects online, I also work as a camp counselor at Camp Oasis, a summer camp for children and teens who have Crohn’s disease and ulcerative colitis. I also volunteer at many local CCFA events and this year will be crewing for the Get Your Guts in Gear bike ride for IBD. I love my german shepherd dog Scout, my cat Ludacris, and not wearing pants as much as I can get away with!
For public and motivational speaking, product reviews, support group and hospital visitations, etc. please contact me at email@example.com
Inflamed & Untamed
P.O. Box 970114
Ypsilanti, MI 48197
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About me page: http://about.me/agirlwithguts