April 2012
29 posts
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The first time I looked at my ostomy. (HAWMC Day...
The First Time I… Write a post about the first time you did something. What is it? What was it like? What did you learn from it?
The first time I looked at my ostomy…
My ostomy is something i’ve rarely spoken about on this blog and part of that reason is because I had it during the “dark days” that I wrote about yesterday. Being that I view my situation so differently...
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Coming out of my depression. Was it all a dream?
It’s almost like a dream and that girl laying in the hospital bed for six months wasn’t me. Even though it was only a little over three years ago I almost feel like it didn’t happen.
(I still can’t believe that’s me.)
Most of you are always asking me how I stay so positive and where I get my optimistic attitude from. Sometimes I don’t know myself where it...
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Don't hate the ostomates!
Today a lot of talk has been going on about discrimination against ostomates in public swimming pools. There are people out there that want to ban ostomates from swimming in semi public and public swimming pools.The argument is that an ostomy in the pool would be unsanitary and offensive.
Ohhhhh! You mean just like how unsanitary and offensive it was for black people to drink out of white...
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Can you be sexy with an "ugly" disease?
YES, you can!
I’ve posted this picture before. It’s a little risque, but I feel the need to show people that there is nothing gross, dirty, or unattractive about someone who has Crohn’s disease or ulcerative colitis. We can even be attractive…or dare I say it, sexy! That large line from my belly button down is my scar from my total colectomy and j-pouch construction surgery. It’s quite long...
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On Twitter?
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Where are you getting your IBD information from?...
With the internet these days support and advice is at our fingertips. It’s an amazing thing! I remember back when I was diagnosed (1996) I was young and if you can believe this…computers were not yet part of everyone’s house. When my family did get a computer a couple years later we had dial up and if you’re old enough you most likely remember that annoying noise it made...
This is bound to make you laugh! →
Click it! :)
Good appointment.
My GI doctor rules. FYI
After all the stupid docs I’ve dealt with in the past I know a good one when I see one.
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This months give-away!!
Oh haiiii! You want that colon broach don’t you? Well it can be yours for FREE. Alright let’s be honest here, nothing in life is for free. I’m going to make you do something to get this, but it will be worth it. Promise.
This hand made colon comes from Simmone and it’s pretty fantastic. I got one for my birthday and I wear it often. It’s a great conversation...
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"If I can't be beautiful, I want to be invisible."...
Open a Book. Choose a book and open it to a random page and point to a phrase. Use that phrase to get you writing today. Free write for 15-20 without stopping.
“If I can’t be beautiful, I want to be invisible”.
Well holey moley! What a perfect phrase I landed on. I couldn’t have done better if I had planned it. The above phrase comes from the book Invisible Monsters by...
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Announcing the Chronic Disease Diva/Devo (CDD)...
Andrea Berke
Andrea exemplifies what a Chronic Disease Diva stands for. She overcomes her disease and lives her life to the fullest despite her struggles. She is a leader in real life learning as much as she can about her disease and teaching her family and friends about it. She was nominated by her best friend, Noelice Francisco. Here is what Noelice had to say about Andrea:
I would like to...
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The clear diet.
Is it just me or do you guys hate this stuff? I understand the point of it, and that you have to go from clears to softs to solids, etc.
BUT SERIOUSLY?
Do you guys have beef broth for breakfast IN THE SUMMER? Ew. No you don’t, because that’s enough to make anyone start vomiting again.
(My clears from yesterday’s breakfast)
Also, not only is jello, broth, watered down...
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No matter what you do to explain your disease some...
What’s a lesson you learned the hard way? Write about it for 15 today.
One of the lessons I have had to learn the hard way is that sometimes no matter what you do to explain your disease some people will never get it. It’s something that over time I have had to learn to accept and just give up on with some people. There was a time in my life when people would say things to me like...
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Hello from the hospital!
As my readers I feel I owe it to you to let you know i’m in the hospital, though I did debate on not mentioning it. Not because I don’t want you to know, but because I don’t want any pity or sympathy. This stuff just comes with the territory of having Crohn’s disease. I came here a few hours after I got home from Chicago (around 3am) because i’m in pretty bad pain...
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HAWMC Day 14: Describe your dream day.
Describe my dream day? This is another one that is so difficult for me. I have many different kinds of dream days depending on who or what is in my life at the time. A dream day for me could be as simple feeling healthy and energetic all day because sometimes that is all I long for when i’ve been sick for a long period of time. A dream day could be spending the day with someone I love or...
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Mirror Mirror.
Here is the subject for today’s Health Activist Writer’s Month Challenge: Stream of Consciousness Day. Start with the sentence “This morning I looked in the mirror…” just write, don’t stop, don’t edit. Post! (I cheated. I stopped AND edited!)
This morning I looked in the mirror and I felt pride. It’s not common that I look in the mirror and feel something postitive.
...
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What is Crohn's Colitis? Can you have both...
This post will make some of you mad.
You will argue with me.
I encourage you all to constructively discuss this on my facebook fan page here if you like. This is a post i’ve been wanting to do for awhile. In fact, Jackie and I have a video we are going to be doing that goes along with this soon…hopefully soon. We have written to, and spoken with doctors and surgeons to get as much...
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HAWMC Day 9
Today’s HAWMC is to create a Keep Calm and Carry On poster. We also could relate it to the health condition we write about.
I have to admit I am not a fan of the Keep Calm stuff because it is SO overdone now. But I am playing along anyway. :)
*Disclaimer: If you like what i’m posting and want to spread IBD awareness go for it! But please credit myself/this blog and always link back....
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Eggcellent!
I made this easter egg last night. Just in case you forgot, I do not have a large intestine. :)
*Disclaimer: If you like what i’m posting and want to spread IBD awareness go for it! But please credit myself/this blog and always link back. Thanks! -Sara
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My 1st Methotrexate Injection: HAWMC
It’s day 7 and we can write about anything! So I thought i’d share how my first methotrexate injection went last week. Maybe i’ll refer to it as meth? That aught to be fun if I tell people I shoot up meth!
In complete Sara fashion my first thought was I have to make a YouTube video during this. So I recorded it. However it will never be posted because the lighting, sound,...
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SMILE. YOU CAN CLIMB STAIRS!
For day 5 of the HAWMC, WEGO Health told me I had to write a ekphrasis post by going to flikr.com and “exploring”. Then I was to select a picture, paste it here, and write about it. Not only just write about it, but ALSO link it to my health focus.
Stairway to Where?
Edit: This was not the original photo I used when I posted this. That link no longer exists so I replaced that...
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I write about my health because... (HAWMC D4)
“I write about my health because…”
So WHY am I here? Why do I talk about embarrassing and difficult things and put it out there for all the world to see? It comes down to this…
I think the number one reason I write about my health is because I remember the many years I spent with my disease feeling isolated and ashamed. I did not know a single person out there with...
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Methotrexate Injections & Remicade combined for...
As if I didn’t need another reminder that I am a sick person I am now the proud (not proud?) owner of lots of needles, a sharps container, and a phial of methotrexate.
I have lots to say so far about methotrexate…how I felt when it was prescribed, my fears and concerns, why I am taking it, how my first injection went, how I am sad I can no longer drink alcohol, etc. etc. I could...
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Health Activist Writers Month Challenge Day 1: A...
A Health Time Capsule
My name is Sadie D. Stewart and I live in Manzanita, Oregon. I am 35 years old and a journalist for The Oregonian. I have blonde hair, blue eyes, and an internal computer located where my ancestors housed an organ called a heart.
I am a Cyburg, which means I had a surgery to make me half human, half robot. We do these surgeries so that humans don’t have illnesses...
