I'm going back to work...
(So I wrote this sappy little love story below about my experience where I work. So read it! haha) 3 years and 1 week ago I walked into a high end salon at 90 pounds with very pale skin, sunken eyes, and thinning red hair to ask for an application. I was greeted by a beautiful blonde woman who I later found out would be my boss. I remember walking out of the salon and getting into the car of the...
I feel like I am falling apart!
Falling apart. My joints are terrible once again and this time it’s only 5 weeks after my remicade infusion. I literally can’t drive my car because it hurts to turn the wheel. I can’t reach for things that I need. I can’t dress myself or do my hair or shower without help. It made me cry yesterday because I am just too young to feel this way. Sometimes I feel like an 80...
Here is the latest in my cake decorating.
Did your Doctor audition for you?
You are still in the running to become……. AMERICA’S. NEXT. TOP. GI! We all know that a good doctor is hard to find. It seems absurd to me that there are so few of us who are happy with the care we are receiving. It seems even more absurd that we stick around and keep these doctors that we are unhappy with. I have shared a few horror...
If you missed our LIVE chat today about IBD you should be able to watch it here. This was the first time we did it so still working out the kinks. The beginning is kind of weird because we didn’t know what we were doing yet. Next time we will focus on a specific topic like: IBD and diet. IBD and relationships. Surgery. Etc.
My self-esteem has plumeted today: IBD and teeth.
Oh hi! Just got some x-rays and had an awful, but greatly needed exam at the dentist. :( I talked a little bit before in a video blog about IBD and dental problems. After I posted that video I got a few offers from dentists or people who know dentists to help me out. Today I got a free exam and x-rays which I very much needed but had been putting off due to the fact that I didn’t work...
Kiss My Diseased Butt!
I baked and decorated this cake yesterday while I was angry. Of all the things I have ever baked I have shown you guys this cake and then a cookie I made into the shape of a colon with some red candies on it to represent ulcers. Do you think i’m a weirdo yet? I was a cake decorator in a bakery for about 6 years. It’s been about just that long since i’ve decorated a cake....
We don't poop ALL the time!
We, as IBD patients, tend to focus a lot on the bathroom. We make jokes, post pictures of bathroom humor, and talk about poopin’ a lot! That is all fine and dandy, I do it too. But, we don’t poop ALL the time! I don’t have a colon so naturally I use the bathroom more than a healthy person who has a colon. When I was in bad flare-ups before I had my colon removed I would go...
The future is even more uncertain when you are...
Everyone fears the future at times. But when you have a disease sometimes you don’t even know if you’ll make it to the next day. One of the things I have learned from being sick is to be prepared to change your goals. You have to be a lot more flexable with your plans for the future. Speaking of Crohn’s disease and ulcerative colitis some of the things I have feared have...
How Chronic Disease affects the whole family.
Yesterday on my facebook page I asked you if you ever felt like a bother to your family because you are sick. I think almost everyone said YES. The truth is, being sick affects the whole family. When you are diagnosed it’s like your entire family is diagnosed along with you. It’s not hard to start feeling guilty when your disease is taking a toll on everyone around you. It...
When doctors don't believe you.
“It’s all in your head.” Today I am in really bad pain. The kind of pain that almost brinks on panic…if this gets even a tad bit worse I might end up in the emergency room. My first reaction was to go to my medicine bin (yes, it’s a bin) and dig through to see if I had any left over pain medications from previous hospital stays. I usually have stuff left over...