June 2012
27 posts
9 tags
Coming Out of Hiding. (Meet Marisa part 2!)
(So now I am going to share with you a blog written by my friend. You have to understand that for some people talking about these things is difficult, whether it be in person to family or friends or even anonymously online. Sometimes even writing things down that will only be read by your eyes only is difficult because it’s still facing your demons. So when you read this blog, read it with...
19 tags
"The Hiding Phase" (Meet my friend Marisa part 1)
A friend of mine is in a position that I used to be in. We will call it the “hiding phase”. The hiding phase is where you are still not able to talk about your disease and you do a lot of work to hide it from everyone. There is embarrassment involved, feeling ashamed, being isolated.
Have you been there?
I have.
My friend Marisa has certainly had a difficult journey just like most...
6 tags
Even my dog knows how to hurt me.
You see this seemingly innocent looking German Shepherd?
This is my dog Scout Severus Kaynine. He sure is a handsome dog. However him and I are not talking right now. For some reason he has been acting up a little bit every time he is left alone in the house. He is used to having me here all the time so when he is left alone I always come back to find something he has torn up. A few nights...
Anonymous asked: is it normal to not lose weight with an ibd?
18 tags
Do IBD commercials, news reports, etc. make you as...
Every time I see a commercial on the television or a story done on TV of a patient who has Crohn’s disease or ulcerative colitis I immediately get excited. My first thought is “yay, finally more awareness!” and then I quickly am embarrassed at how wrong they get it and then that embarrassment turns to anger.
Frankly, it’s insulting. It gives people watching who...
15 tags
Dear Tiny Dancer...
This blog was something I wrote specially for The Gutsy Generation. You can find their blog here and their facebook group here. They are part of the CCFC and I just love what they do. Here is how they describe themselves: The Gutsy Generation is an initative by the Crohn’s and Colitis Foundation of Canada’s (CCFC) Youth Advisory Council (YAC) to foster awareness, support and action...
2 tags
1 tag
A word to everyone trying to make a difference in...
I put my heart and soul into this blog. Into every sentence I write, into everything I do…
About once a week I wake up to find someone has stolen something of mine whether it be an idea or copied a project or word for word copied and pasted my blog onto their own and are therefore using it as their own original work when it is not.
Today I woke up to find someones twitter who word for...
11 tags
It never heals it never goes away.
Ewwwwwwie I’m about to show you a gross picture. This picture was taken exactly a year ago today. That means today is a 1 year anniversary for me so let’s all eat cake!
Most people would be upset to get results like this. I had inflammation and ulceration throughout my entire j-pouch and as far up my small bowel as they could see with the scope. What this meant was that I was in a...
17 tags
I'm someone else, I'm someone new...
Meet the Sara that existed 5 years ago. She was depressed, scared, alone, and not willing to talk…
Believe it or not I’ve been a blogger for a very long time. I used to write another blog about something else entirely and it was pretty popular about 11 years ago. I made some of my best internet friends back then (Hello Cass, Lauren, Tara), that I still talk to today! I ended up giving...
Anonymous asked: i've been coping really well this whole year with my ileostomy, a few ups and downs but now that my reversal is nearing I am starting to get even more eager and upset that I have to live with an ileostomy and i can't help thinking why almost all the time.
16 tags
14 tags
What is a J-pouch?
So what is it? That is the question I get asked most often and you know what? I get it, a j-pouch is kind of hard to understand. Most people have never even heard of a j-pouch and when I explain it to them I am often met with puzzled looking faces. I’ve even had doctors and nurses at the hospital confused when I say I have a j-pouch and they start looking for an ostomy bag.
This is a...
Sometimes I forget how bad the really bad pain...
9 tags
Crohnology!
Hey peeeeeeeople!
The kind folks over at crohnology.com asked me to be their featured e-patient which I thought was so nice, what an honor right!? So I put on my best comfy sweat pants, tied my hair up, and put my reading glasses on and sat down with a nice cup of tea for our interview. Don’t worry, this interview was via email, if I was being interviewed in person I would have dressed up...
12 tags
Limited Edition TEAL Awareness Wristbands!
The limited edition teal Crohn’s disease and ulcerative colitis awareness wristbands are going fast! I only have about 10 left so if you would like one please email me at agirlwithguts@gmail.com so I can email you an invoice.
Also! It was brought to my attention that there is another person out there selling Inflamed & Untamed wristbands and ripping off my work. The original...
10 tags
The hospital shower.
The hospital shower. This is the shower you take when you feel like maybe, just maybe you might end up having to be admitted to the hospital or take a trip to the ER.
Know what I’m talking about? Maybe you don’t but I am sure some of you do.
Whenever I start getting really sick or I have a night where I am in a ton of pain I start thinking about how I might have to go to the ER...
Children's book about TPN.
This may be of interest to you parents out there. Thrive RX makes a book called My Special Line geared towards children who need to be on TPN.
Here is an a page from the book
For more information and ordering information visit email us at info@thriverx.net or call us at 888.684.7483. We will also have the book at our booth at UMDF, Oley, AGMD, and PIFS conferences this summer
6 tags
10 tags
(ADULT CONTENT WARNING) Would you have the guts?
It’s not often that I have guest bloggers or share other peoples stories but I found this story to be very inspiring and asked if I would be able to share this with all of you. Lucky for me (and you) I was given permission.
So I have this friend, we will call him ‘M’ who did something I know that I wouldn’t have the guts to do - he ran naked with his ostomy in front of...
13 tags
If you're related to me kindly close your eyes and...
Hey hey guys and dolls!
I’ve got some inspiring stories lined up just waiting to inspire you to be more confident about your disease, your scars, and your ostomies. First, right here and now, I am going to share with you my interview with WEGO Health and also share with you a picture that I’m a little afraid to post (don’t be disappointed in me Grandma! The human body is a...
14 tags
When my disease made me ugly.
Yeah, that is me. And yes, that is ugly. But this isn’t the kind of ugly i’m talking about because I am talking about how my disease made ugly on the inside. Though both that and the picture above occurred at the same time.
You see, i’m not talking about how during this time I was pulling fist-fulls of hair out of my head every day so that my hair was thin and scragly....
10 tags
I am more than just the Sara with Crohn's disease.
Sometimes all it takes is just getting out of the house.
As you know I reported to you guys that I wasn’t feeling well both physically or mentally. The physical part I can handle a lot better. I am used to pain and suffering and have accepted that at times that will just be a part of my life. But one thing that I can’t handle so well are the psychological areas - I was so so lonely...
8 tags
Special deal for inflamed & untamed readers
Want this cute intestine plush from I <3 Guts? The fabulous folks over there have offered my readers 10% off all guts!
Use the promo code GUTSGUTSGUTS to get your discount. These make great gifts for anyone who has Crohn’s disease or ulcerative colitis!
